I've been feeling very edgy, anxious, and just plain weird today. It feels biological. I had trouble sleeping the past two nights which is concerning. The doxepin has worked very well for my sleep. I only take 9 drops but I'll increase it tonight. My brain fog has increased as well as the dizziness. It could be from the Mepron.
Yesterday I went to the podiatrist again. He said my toe looks good but to pay attention to the pain. Hopefully I won't have any more incidents with it. I have curvy toenails so it is easy for them to become ingrown. If anything else happens I'll need to have the toenails of my big toe removed. Yikes. That sounds really awful. Weird things go through my mind about it. Things like what if I have to have the toenails removed (just my big toes) and everyone goes fine. Then what if later I get dizzy and look down to see missing toenails and then faint.
The podiatrist injected kenolog, which is a corticosteroid, into the base of my big toe where a 9mm cyst had formed. Steroids are really bad for lyme and cause it to move deeper into the tissues as well as become more disseminated. I needed to do it though because the cyst would keep growing and would eventually interfere with my ability to wear shoes.
I've been on Mepron for 25 days now. I think it is helping though today feels like a setback but could be do to the injection.
I saw another healthcare provider this week who I swear was stoned. I'm sure I smelled pot. Very weird and confusing.
Since starting treatment I think I've had about 20% improvement. It's not a lot given that it's been 4 months now but I'll take it. It means I'm operating now at 45% on a good day. Again, not much but it's better than it was 6 months ago.
I feel stuck on what to do next regarding treatment. I can go see another specialist who is nationally known and get a second opinion or stay with who I'm seeing (though everyone I know who sees this person wants a second opinion for some reason). But it means forking out a lot of money for a consult. I also don't know if I should push for trying to go on an antiviral while also treating babesia.