The search for answers continues. So does my frustration with the medical system. My RNase L panel came back. This was supposed to be the definitive test that my doctor was going to use in determining whether or not I would start Valcyte.
There's two parts to the test. One was normal. The other was a little elevated. I have no idea what it means but it certainly doesn't show an active viral infection. It shows my immune system is dysregulated. It turns out my doctor also wanted an elastase test done too but his office screwed it up so it wasn't done.
I got results back from bloodwork ordered by my insurance doctor. Blood glucose was at 95 (99 is high). My white blood cell count continues to climb and is just below high. IgG EBV was 1600 +. Normal is less than 100. The lab ran the wrong tests so 2 important tests weren't done: HHV-6 and chlamydia pneumonia.
In the meantime I'm having pain in my liver area. It's driving me crazy.
There might be a mold problem. We found mold behind a layer of some plaster type thing that was started to peel underneath the window in the bedroom. That plus the high mold count in the petri dishes could indicate a mold problem. Given that I have the multi susceptible genotype it could mean I have mold poisoning. With this genoty pe my body doesn't recognize the presence of mold toxins so they just continue to build up in my system eventually wreaking havoc with my immunce system.
I've about had it with my CFS doctor. I'm tired of him ordering 1 or 2 tests each month. I want aggressive testing. I'm looking for another CFS doctor here in the area. Hopefully one covered by insurance. I'm less than impressed with my doctor. Or maybe he's just someone to be angry at right now.
I just can't believe with all the tests I've had that, although there are clear abnormalities, still no direction in treatment.
I sent away a sample of the mold to be analyzed by a lab. Hopefully that will come back soon.
I'm sick of doctor's, medical tests, uncertainty, and sick of this damn illness. Something is really wrong and they can't find out what it is. So I'm back to searching online myself for answers.
Or maybe I just will get a medical marijuana card and medicate myself. I've been considering it. This whole mess is just getting old. At least I could have a few good laughs.