Ugh. If I had more energy I'd be feeling really frustrated. I am in a bad crash. The past week has had its share of stressors both good and worrisome. It's a drag having an illness or disease (I don't know what to call it anymore) where good stress can cause a crash but there you have it.
I saw my dad and LuAnn on Tuesday for a couple hours. It was a short visit that tired me out but I was so glad to see them. It has been a year since I last saw them. They went through the healthcare hell ringer last summer which prompted them to move out of state and leading to the diagnosis that my dad's prostate cancer had returned (he also has chronic lymphatic leukemia). LuAnn has rheumatoid arthritis which is managed with medications but it still gets to her.
Thursday there was a home visit from the vet for Katie which always stresses me out because she has chronic renal failure but is doing well considering. The vet had to sedate her because she is so feisty with strangers. Friday she was barely moving, not eating or drinking which was very worrisome. She pulled out of it and is back to her cute self.
Matt was here from Thursday to today. He is really a great guy and it was great to see him as well.
So it's been a week of stressors. Two of them (the visits) were expected and I kept my plan of pacing. The only thing is it didn't work. I can't figure out what went wrong unless because of the Valcyte stress any little stress right now just puts my body into crash mode. I think too that my adrenal glands might need some extra helps so I boosted my cortef dose from 5mg to 7.5 mg.
Most times I feel like I'm shooting in the dark with this illness. I really want to avoid crashes because for me it means becoming bedbound until I come out of them. Even when I come out of the crash I can't do much. When I'm in one it reminds me of how grateful I feel for what little bit of functioning I do have.
This swine flu thing is a bit disconcerting. Normally I'd let this sort of story pass me by but with my immune system dysregulated and Valcyte lowering my immune system I'm a little worried. All it takes is to be in the wrong place at the wrong time. I really hope people take heed to the warnings and stay home if they feel at all ill.
I'm over this whole Valcyte thing. I've come to the conclusion that it probably isn't going to help very much. I'm glad I did it just because it had been recommended to me by various doctors. I'll stick it out for a total of five months unless I start having consistent improvement after four months.
I'm ready to get on with my life and repairing the damage that Valcyte has caused.