Friday, July 31, 2009

Georgetown ME/CFS Study

I've had a wonderful week. Will post updates this weekend but wanted to post this information I found while perusing the web. The CFIDS Association of America is on Facebook and this info was posted there. Here's the link to the Facebook page:

http://www.facebook.com/pages/The-CFIDS-Association-of-America/47921632107?v=feed&story_fbid=109317212107&ref=mf

I just tried the links and had problems getting to the site so here is a cut and paste link (the link to the study is provided on the site):

http://www.facebook.com/pages/The-CFIDS-Association-of-America/47921632107?v=feed&story_fbid=109317212107&ref=mf

This is a direct quote from someone who is participating in the study. This seems like an important study that is very much in need of healthy people to provide spinal fluid that can be compared to the spinal fluid of ME/CFS patients.


The Georgetown University located in washington Dc is conducting a very important study reguarding CFS. They have identified a specific set of proteins found in the cerebral spinal fluid in patients with CFS. These proteins are not found in healthy people and maybe the actual pathology of this disease itself.Upon enrollment I was informed that they are in desperate need of healthy control subjects that are WILLING TO HAVE A LUMBAR PUNCTARE PERFORMED. My girlfriend has agreed to participate with me. I am urging each and every one of you to try to recruit a healthy volunteer as these findings may very well lead to a cure of this horrific illness. Study participants will be required to stay in the hospital for a total of three days where they will undergo testing and will be paid in the amount of $400.00 for their time. I will post a link below for those of you who maybe interested. Remember, it is up to us to make a difference! Lets solve CFS!!!


Here's a link to the study itself:

http://clinicaltrials.gov/ct2/show/NCT00810329


If anyone knows anyone near Georgetown who is wondering how they can help the ME/CFS cause here's their chance...

In peace and health-

1 comment:

alyson said...

Thank you for posting this! I'm going to post it on my blog, too.