After really thinking about it I've decided not to go private. I'll deal with the other stuff in some other way or at some future time maybe I will go private. It doesn't quite seem fair to finally be experiencing some improvements and then limit who can see it. I'm also aware that it's a pain to have to sign in to see a blog especially when one is having a bad me/cfs day.
I'm continuing to experience improvements. For the past two years any improvement I've had was short lived and limited to a day or so. This run has lasted twelve days now. I'm a bit more tired today than I have been but I've also been under a lot of stress which is never good for us.
So, I decided to seek out therapy. I figure it can help me continue to make the necessary life style changes as well as help me develop tools to be true to myself. I also want to come home to myself.
I spent all day last Thursday researching therapists who were listed on my insurance plan. I finally settled on one who sounded great, had a great web page, and good training. I had first session on Monday. Over the phone she told me she had worked with cfs patients in the past. You certainly couldn't tell during our session. She actually psychologized this illness! She actually said I developed my symptoms due to psychological reasons!!!! I could not believe it. She was surprised I wasn't working. As if I could. In hindsight I realize she has no knowledge of this illness and thinks its just fatigue. I tried my best to educate her but I was just a patient and she clearly was having none of it. I will not do therapy with her. At some point I want to put together a packet of information to give to doctor's, therapist, or anyone else so they can become educated on this. I can easily go off on a rant here. The other part that is a bummer is I only have 20 sessions per year and I used one up on her. It was a good lesson though. Next time I will ask the potential therapist how they view cfs.
Tomorrow I have my Tilt Table Test. I'm a little nervous,mostly because I don't want to crash afterwards. I've really been enjoying these improvements.
My last day of Valcyte will be July 19th. I can't believe I have only 19 days left. My doctor will put me on a new immune modulator once I finish Valcyte. Hopefully its out by now.
I haven't been able to watch the rest of the Gupta Retraining DVD's because the computer that has the DVD player is not working at all. I'm disappointed about it because the stuff I've learned so far has been helpful. It's a nice adjunct to Valcyte and the Methylation Protocol.
Has anyone else had the Tilt Table Test? If so is there anything you recommend for recovering afterwards?
Peace and Wellness to All