I saw a local doctor today (the slow virus one). He specializes in HIV and Infectious Diseases. I didn't sleep well at all last night so I was in even worse shape cognitively today. The physician's assistant shared with me what they were concerned about. He said they also noticed I have odd movements so they want to rule out Parkinson's. I was kind of blown away at how perceptive they are at recognizing neurological symptoms. The p.a. said he doesn't believe in cfs and feels its a wastebasket diagnosis so they are going to run some tests to rule out all the major neurological diseases like ALS (which is my worst fear), MS, Parkinson's, and two others that I can't remember. Right now my diagnosis is frontal lobe dementia.
While I might not agree with the diagnosis I am glad they are running more tests and ones I've been wanting since getting sick-simple things like B12, folic acid, iron (which has never been tested), and others. They are also referring me for a Brain Spect Scan which doesn't involve being in an enclosed space. And then they will refer me to a Neurologist. I've been wanting to see a neurologist for quite some time.
All in all I'm grateful they are running more tests and I'm glad to have other neurological disorders ruled out. Any information is useful. Because I got diagnosed relatively quickly there are a lot of things that never got tested (like B12, iron, etc) that I think are important to test for in any chronic illness.
I have to figure out how to get some sleep. I'm so grateful for people's feedback from my post yesterday. It has made me realize how exhausted I am. All the events of the past few weeks combined with lack of sleep has been slowly taking its toll.
On Saturday we went to the city's Art and Soul Festival. This is something I would not have been able to do 5 months ago. We stayed for almost two hours. It's a festival featuring various musicians. We went to the Gospel stage. Oh my gosh-that music was powerful. I felt it down in my bones. It was beautiful and rich. People were smiling and dancing. I felt this deep sense of joy at being able to be present at this event. I felt at one with everyone. There is nothing like hearing music live. If you like gospel music, anything by the Hawkins family and choir, or the Oakland Interfaith Gospel is wonderful.
I just completely ran out of steam so I'll stop here.