Thursday, October 1, 2009

It's Been Awhile...

It's been at least two weeks since I last posted. I wish it was because I was really busy because of huge leaps in improvements. Sadly, Tiger Lily, our 11 year old kitty died two weeks ago. She had an aggressive form of cancer (I think I blogged about it when she was diagnosed three months ago). Since she died I haven't had the heart to post or write or do much of anything. She had such a presence. Now what is present is the absence of her. I've been so sad about losing her and more than a bit tired of grief in all its forms.

Luckily we still have our two other kitties who are 14 and 16. The sixteen year old has chronic renal failure that was diagnosed three years ago with a prognosis of less than one year at the time so she is a miracle kitty.

I'd had a virus that lasted about a month. That left right before Tiger Lily died then I crashed again and am trying to recover again from that.

I'm trying to figure out the next step in treatment. I stopped Valcyte on September 7th because of my liver enzymes. Luckily they have returned to normal. I'm having some funny bloodcounts. My hemoglobin is borderline high as is some other red blood cell test. I have no idea why. Also, my blood sugar levels are swinging going from 110 one week to 56 the next. I find this puzzling. I've read that low cortisol can affect glucose levels. I have increased my hydrocortisone by 2.5mg to help the hypoglycemia.

I tried going back to my acupuncturist but was reminded of the reason why I left him in the first place. He's just not that good. When I first saw him in 2005 I would say he was excellent but he seems to have burned out or something.

I have no idea what sort of practitioner to see next. I feel a bit stuck. Right now my treatment consists of continuing with the simplified methylation protocol, nebulizing glutathione, bufferred Vitamin C, Magnesium Malate and...that's it. Oh, and Amantadine which I'm finding somewhat helpful. I was on Valcyte for 7 1/2 months. It did improve my baseline functioning by about 10%. Not a lot but I'm extremely grateful for any improvements. I haven't had my antibody titers retested which is frustrating to me. I'd like to see what my HHV-6 and EBV levels are right now.

I started Prometrium 4 weeks ago. Shortly after starting that the terrible sweating stopped. Now I get light sweats. I think it's helping my sleep.

I've been able to get out a bit here and there which I always enjoy. My youngest sister came over with her golden retriever on Saturday. I really enjoyed visiting with them both. Her dog could easily be a therapy dog.

I've started reading Anne Rice's book about her return to spirituality. So far so good. I like reading about different perspectives on various spiritual disciplines. I don't believe there is one "right" religion or spiritual discipline but I'm trying to find a place that feels like it fits for me.

I'm behind in emails and other things but I'm not judging myself for it which is a nice change.

So that's my update. Now I'm going to catch up on blogs...


At Home on the Rock... said...

Thanks, for the update, Terri....I've been wondering how things are going with you. Sorry to hear about your kitty.

Renee said...

Hi Terri
It is good to get an update and know how you are doing. I am so sorry that your Tiger Lily died. It is always so difficult when someone we love dies ~ animal or human...I know Joel and I cried buckets when our 15 yr old dog died so many years ago. Their companionship and love are such a precious gift. Please know that you are in our prayers at this time of sadness.

Joanne said...

I am so sorry that you lost your dear cat losing a pet is always difficult to come to terms with.

Having a virus does so pull us down so if we have chronic ill health. I just had one a couple of weeks ago and was surprised how much it set me back even though I have been doing so well. What surprised me more was how down and energyless I felt which is not uncommon with viruses.

Take care and spoli yourself and hope you start to feel better soon.

Jo said...

So sorry to hear about your dear kitty. I know what you mean when you say you are tired of grief.

How about a bit of pampering right now? I like Shiatsu massage. It works on the same lines as acupuncture but is not so invasive. You keep your clothes on so stay nice and warm and it feels safe. I find it deeply relaxing.

In any case, look after yourself.

alyson said...

Hi Terri - Glad you're back online. I'm sorry to hear about your kitty. Take care of yourself. I wish you good health!

Pris said...

I lost two pets in the first worst years of this illness and so I can totally relate to the 'yet another loss' feeling that overwelms.

Maybe right now is the time to do nothing different with treatment, Terri. Let your body rest. Treat yourself well and let time be the treatment for a while.