NOTE: PLEASE DO NOT REPOST WITHOUT PERMISSION
I don't mind the info being reposted on blogs. Everyone has been wonderful about asking and I feel like we all help each other out with things but please ask if you are wanting to post on a message board.
I received a phone call from my doctor's office today. They are starting a study to see what XMRV is doing in the body. It will begin next week so I'll be going up on Monday to get my blood drawn.
I've been worried about how I was going to get the money together to get tested. Now I don't have to worry because they are going to send the blood to WPI (or VIP dx labs which uses the same technology that WPI did in the original study). I will get tested for both active and latent XMRV and it will not cost me a thing! As I mentioned in a previous post both tests cost $650. The study will also involve filling out a questionnaire. It will take a couple months before the results are in but that's fine with me.
Apparently Dr. Mikovitz is very interested in the population that is served by my doctor's office. I'm feeling very grateful for my doctor and even more grateful for Dr. Mikovitz and even more grateful for Andrea Whittemore Goad and her family. If it weren't for them we would still be in the dark ages when it comes to this disease.
Changing subjects: I won't be continuing the Cipro. I took my third pill this morning and had terrible dizziness along with terrible anxiety and a few heart palpitations which doesn't help the anxiety any. I've been feeling horrible all day and just counting down the hours until this stuff leaves my system. I called my podiatrist who changed the prescription to Keflex. I hope the only reaction I have to Keflex is my toe getting better. It has already improved in that I'm having very little pain.
On a completely unrelated note I wanted to share a couple things that fellow ME/CFS'rs have created. One is a website designed by Toni . I always look up blogs that people who comment. I clicked on Toni's name, then clicked on her website fully expecting a blog. What I found instead was beautiful. There is what looks like a painting on the first page. It is stunning. I thought to myself "Wow! Where did she get that painting? I want one!" She painted it! If you want a treat I recommend visiting her website and reading everything on their. There are jewels everywhere. I found it quite moving.
Then there is Pris Campbell's book Sea Trails which can be found at this website It is a story of a life changing journey she took via a 22 foot boat down the east coast. See Pris's blog Song's To A Midnight Sky to read more and to read her moving poems (she is also an accomplished poet). I read a couple excerpts from her book and was so thrilled I purchased a copy for myself and a couple for gifts.
These are just two people who I find inspirational. They also give me hope because both are about as ill as I am and they both created beautiful things. I think I might start mentioning other people's creative blogs here as well.
There is so much pain and suffering in our ME/CFS community but also so much beauty, compassion, wisdom, and kindness.