Tuesday, April 13, 2010

The Hearing

I don't know how coherent this post will be. I'm wiped out. The judge did not make a ruling today but I'm hoping that he will rule in my favor. If not, as my attorney said, we will win on appeal.

When the judge started questioning me about "chronic fatigue" I could sense that he was not a believer in this diagnosis and got nervous thinking he would rule against me. His disbelief was communicated in his voice. My cognitive difficulties were very apparent and several times found myself forgetting what his question was so I asked him to repeat it and commented that I had forgotten what the question was.

He brought up the neuropsych testing done by one of their SSDI psychologists and stated "you seemed fine during that session" even though the testing showed a 30 point drop in IQ scores.

He asked the vocational expert what sort of job I could do and she came up with "plastics inspector." Then he said "if someone needed to lay down at will would they be eligible for any work" to which she replied "no." Then "if someone can only leave the house once every 3 weeks is there any full-time work they would be eligible for" and she said "no."

The judge stated he believed my testimony and that it was consistent with written testimony provided by my family as well as my doctor's testimony so I took that as a good sign but one never knows. He is a new judge and goes by the book so my lawyer couldn't get a read on a certain win but he said it went about as well as expected.

It was emotional. I'm glad it's over. I feel exhausted and numb. Now I have to get through the 2 hour HIDA scan test this Thursday and then the 2 hour brain Spect Scan a week from Friday.

I wanted to say how much I appreciate everyone's support and prayers. I could feel them....

More later on in the week...

Thursday, April 8, 2010

SSDI Hearing in Four Days...

Just writing the title of this post made me anxious. My hearing is Tuesday morning at 8:30. I have to be there at 8 to meet with my attorney. The thing that is making me most anxious at the moment isn't so much the outcome (although that stresses me out too) but having to be up and functioning at that hour in the morning.

My body does not function before the afternoon hours. I'm worried about fainting. If I did faint the Judge would postpone the hearing so I need to be able to get through this thing. When I went for my endoscopy which was scheduled at 8:30 I could barely function. I keep telling myself that if I need to lie down to answer the Judge's questions then that's what I'll do. Okay, so maybe I'm just as nervous about the outcome as I am about how I'll feel at that hour.

Yesterday and today I had two episodes of the bad right upper quadrant pain. It only lasted a few minutes but it is right around my gallbladder area. It felt like some sort of spasm. I was a bit alarmed by the pain and thankful it didn't last. I called the hospital where I'm supposed to get my HIDA scan to test my gallbladder functioning. They said they could have me come in on Tuesday but obviously that won't work so I scheduled it for Thursday. It's at 8:30 a.m. I tried for later on but one has to fast for 4 hours prior.

I am still trying to schedule the brain Spect Scan. I need to get that done prior to starting stem cell treatments. It looks like I'll also need to get a bone scan of my jaw. My doctor is wondering whether or not I have a hidden jawbone infection which would explain my sometimes high White blood cell count and the worsening of my symptoms over the past 6 months.

What is such a drag is that the medical tests all cause me to crash. I don't like using up what tiny energy I have on medical tests.

Things are proceeding with the stem cell stuff. I'm going to follow Dr. Cheney's protocol. My doctor has ordered Dr. Cheney's Cell Signaling Factors and Mutaflor. I'll do the CSF's twice a day. His protocol can be found here. I'm trying to find his latest DVD's which discuss oxygen toxicity and also explains in general terms what his protocol is. He also has a brief summary of stem cell updates on his blog.

In the meantime I'm continuing to work on my spirituality which I believe is as important as working on my health.

Oh, I've decided to go gluten free once I get the HIDA scan results.

I'm spending very little time on the computer these days so I'm behind in emails, blogging, as well as reading blogs but I'm trying to do a tiny bit every other day until after my hearing and after the HIDA scan.