I want to write about updates but I'm also feeling pulled to honor Emily Collingridge who died last Sunday at age 30 after suffering with ME for the past 23 years. She wrote a book for people who have severe ME. I have been part of the Facebook group for those with severe ME that Emily started. Even as sick as she was she was able to write a book. Here is a good blog to read more about her story.
And an appeal from Emily in her own words here.
I don't know how many people have to die before the medical community recognizes how serious this disease is.