Monday, May 21, 2012

Treatment Update

I started Colustrum (Kirkland brand) last week as well as Transfer Factor Plasmyco and added in Zith to the Minocycline for the CPN. I started the Transfer Factor (TF) at 1/5 the dose and then quickly moved up to 1/2 pill on Saturday.

I was already feeling crashed from everything but when I woke up yesterday morning I felt like I'd been hit by a big truck. It lasted all day. I was hoping this wouldn't happen until I had everything unpacked and settled. I still have a lot of sorting and organizing to do.

I think it's a combination of ramping up too quickly on the TF and crashing. Today was better. I stayed in bed most of yesterday and today except to take Chelsea out. I'm trying to pace myself with the move but its difficult because I want everything to be finished.

For anyone who doesn't know anything about Transfer factors here's a little summary: Transfer factors are tiny protein molecules that are produced by immune cells called T-cells. It allows the immune system to remember conditions for which immunity has already been established. When a person has been infected, for example, with chicken pox in childhood, their body develops a memory of that illness, and prevents the person from becoming re-infected with it later in life.


Transfer Factors are normally found in all of our immune systems. They are tiny molecules much smaller than antibodies and serve as messengers for the immune system’s other major type of response, the cell-mediated response, which involves white blood cells (leukocytes and lymphocytes).


Transfer Factor has been likened to sending your cell-mediated immune system to college. They can educate or modulate a person's immune system, teaching it to recognize specific antigens and communicating the knowledge that they are present.

It (Transfer Factor) won't cure my infections, but when made with specific antigens seem more efficient at educating the immune system than non- specific immunomodulators. 

My doctor prescribed two Transfer factors: one to target mycoplasma and chlamydia pneumonia and the other to target lyme.

I feel the combination of Colustrum and Transfer factor are helping. I'm not even up to a full pill for the TF and I haven't started the one for lyme yet.

Today I ramped up to one full pill of Zith. Within an hour I noticed less cognitive difficulties (they've increased from all the stress) and feeling better overall. At one point, though it didn't last, I felt perfectly normal. It was a great feeling.

I'm continuing to feel hopeful about getting more improvement. Maybe even a big jump in improvement which would be awesome.

The muscle spasms have mostly resolved although a couple hours after taking the Azithromycin today I noticed a mild version in my right leg as I was getting up (and also the bottom of my right foot).

I'm worried about money but am trying to trust in the Universe that it will be okay. I need to figure out a way to bring in an extra $300 per month. I'm applying for research studies in the hopes of making a tiny bit of extra money. Every dollar counts now.

The painful part of my life right now is Chelsea. Saturday and Sunday were difficult days for her. She was lethargic and clearly didn't feel good. I was feeling panicky because she's a big dog at 78 pounds. There were a couple times that I couldn't wake her. It scared me and made me realize how much in denial I've been in regarding how painful the loss of her will be. She's such an integral part of my life now that I can't imagine being without her. I also felt very alone. There was no way I could lift her if she was in trouble. She even slept through her dinner time which is highly unusual for her (her nickname at the rescue was 'Miss Piggy'). 

I was also panicking because I knew if I had to bring her to the vet hospital I would not have enough money for rent.

I need to start interviewing people who can help out during those times when I'm crashed and unable to attend to all the activities of daily living. I need to get that lined up sooner than later.

Other than that I'm doing okay. 


5 comments:

Toni said...

Thinking of you Terri. Take good care. I hope this new treatment is helpful!

ME said...

Moving is a major stressor, even for a fit and healthy person. I hope the money issues resolve for you sooner rather than later. The new treatment sounds good.

me/cfs warrior said...

Thank you Toni. I haven't been on facebook much at all these past 3 weeks so I'm not caught up with everyone. I hope you are well. It's always wonderful to 'see' you.

me/cfs warrior said...

ME-moving really is a major stressor. I'm feeling the effects of it today. I hope the new treatment gives me more improvement. I feel hopeful.

ME said...

Hope is always good!