I'm not feeling very well. For the past few days I have felt like I was running a fever with chills, the dry gritty burning eyes, bad nightsweats. Yesterday I noticed I had a lot of small bruises on both arms as well as some petechiae on my upper left arm. There were also streaks of red that looked like Bartonella marks. Strange. I have no appetite so am forcing myself to eat.
Today I've felt badly crashed. I decided to take my temperature even though my temp usually runs around 97 or so and was surprised to see I'm running a fever. No wonder...
Concerned I may have caught something because my immune system is subpar, I decided to do a little research into my sub class immunodeficiency problem. I think the correct term is CVID (Common Variable Immune Deficiency). I realized I had never really looked at my labs. I was surprised to see that I'm on the low end of normal across the board in all 4 subclasses (2 out of 4 are low).
With a low NK function, immune deficiency, high EBV, family history of cancers including chronic lymphocytic leukemia, I can't help but feel like a walking time bomb in terms of cancer, particularly the lymphoma's.
I decided to run it by the Infectious Disease specialist whom I saw back in 2011 and who is using Rituxan on ME/CFS patients who meet the criteria. I sent an email explaining my test results, family history, and my concerns. He kindly wrote back a few hours later saying I qualify for being on Rituxan and to set up a meeting with him so they can get me started right away.
It's that darn driving thing again. I live over an hour from him and I can't drive on the freeway yet. I do want to try Rituxan. I think I need to. The side effect profile is what has prevented me from trying it in the first place even though I've had a prescription for Rituxan since 2009.
What's changed for me internally is that I'm aware that I
This is where it is tough living alone with this disease. There's so much that needs to be done but I can't get to it.
Chelsea continues to slowly go downhill. She started limping today-the same paw that she drags when walking (the vet says its related to her cirrhotic liver). I don't know if its liver related or whether she suddenly developed arthritis or if she injured it. I left a message for the vet.
Hopefully she'll let me sleep in tomorrow. I feel like I could sleep for days...