Friday, October 25, 2013

Canary in a Coalmine-Help Launch this Campaign!

From Phoenix Rising:

Filmmaker Jennifer Brea launches the Kickstarter campaign today with the trailer of her forthcoming documentary Canary in a Coal Mine – a film that will help change the face of ME. Interview and article by Russell Fleming (Firestormm).
Jen after a day of shooting Canary
Jen after a day of filming.
“I will never do a full day of shooting again.”
© Canary in a Coal Mine

From the Kickstarter website:

A film about life with M.E., the most prevalent and devastating disease your doctor has never heard of.
SYNOPSIS (from the website)
Canary in a Coal Mine follows the lives of several remarkable people living with a Myalgic Encephalomyelitis ("Chronic Fatigue Syndrome"), a mysterious and devastating disease.They are forced to leave careers they loved, abandon the dream of having children, or face the prospect of being locked away forever in their homes and bedrooms. Worse still, most doctors, and sometimes those closest to them, don't even believe they're really ill.
And yet, surprising things can sometimes grow from these dark places. How would you begin to nourish your body if every food you ate, every object you touched had the capacity to cripple or heal you? How would you fill your life, and what would you toss aside, if you only had three hours a day to live it? What worlds would unfold before your eyes if everything you knew suddenly came to a grinding halt?Canary in a Coal Mine is about the human consequences of a medical system that is ill-equipped to treat an illness that challenges its every assumption, the danger of ignorance, and the power of a name. It’s the story of a community of millions that to most of the world is invisible.

For more, read our Film FAQ or visit our Press Kit page.

How you can help: (from the Kickstarter Campaign website)

First, give and give generously, whatever that means for you. Every dollar counts.
Second, spread the word! Crowdfunding campaigns reach and exceed their goals when very large amounts of people donate small amounts of money. So click on this link and share our page on Twitter and Facebook. Email your friends and family.
Then, follow us on Twitter, like us on Facebook. Stay up to date with the latest on the campaign.
If you are interested in making a tax-deductible donation or investing in the project in a deeper way, email We'd love to have a conversation. 


Shelley said...

I was so excited to learn about this project, and then even more so because Jen is right here in Princeton!

Am hoping to help with the film in some say, and as soon as I thought about it I came over here to make sure you did, too.

I love thinking about your beets and kale, and hope that you and your docs are able to find some ways to slow/stop a downward trend in your health.

me/cfs warrior said...

Thank you so much Shelley! That's awesome that Jen is right in the same town as you!

I'd love to help in some way too. It looks like its going to be a powerful film.

I think me and my docs along with suggestions from people within the M.E. community are going to help.

I posted on the facebook page 25% group and got some great suggestions about what to do about this weight loss and gastroparesis.

I had a good day today. I was out watering the beets and Kale and felt grateful I was able to do so. The chickens sure love it too! : )

I have to have a root canal on Monday and am hoping that will help me feel a bit better.

It's so nice to hear from you. I hope you are faring well over on the East Coast...